The documentary features two young girls, Adalia and Megan, who are living with progeria, a rare genetic disorder that causes rapid aging. Adalia, age 11, has a YouTube channel where she posts videos of herself doing everyday activities, despite her fragile health. She has had multiple strokes and is vulnerable to blood clots. Her parents, Natalia and Ryan, are careful not to worry her about her condition and try to keep her life as normal as possible.
Megan, age 17, is also living with progeria and is part of an experimental drug trial that has shown promising results. She is active, runs every day, and is a writer. Her parents, Bill and Montina, attribute her longevity to a combination of the drug, a healthy diet, and plenty of physical activity.
Both girls face challenges and bullying due to their condition, but they remain positive and inspiring to those around them. The documentary highlights the importance of hope, resilience, and the support of loved ones in the face of adversity.
Here are the key facts extracted from the text:
1. Adalia (Dolly) has an extremely rare condition called progeria, also known as the premature aging disease.
2. The average lifespan of people with progeria is 14 years.
3. Progeria is a condition where the body ages 8-10 times faster than normal.
4. Dolly was diagnosed with progeria at 3 months old.
5. She has had 5 strokes, the first one when she was 5-6 years old.
6. Dolly's family has moved to a caravan park close to a hospital for easier access to medical care.
7. Dolly's mother, Natalia, was a single mom for the first 10 months of Dolly's life.
8. Natalia met Dolly's stepfather, Ryan, when Dolly was 10 months old.
9. Dolly's family is careful not to worry her about her condition.
10. Dolly has a strong online presence, with over 170 million views on her YouTube videos.
11. Megan, another person with progeria, is 17 years old and has defied the odds of the disease.
12. Megan is part of an experimental drug trial that has shown promising results in slowing down the progression of progeria.
13. The drug trial has improved the lives of children with progeria, including their bones, hearing, and heart health.
14. Megan's family follows a vegetarian diet and encourages physical activity to help manage the disease.
15. Megan's best friend, Anais, is studying molecular biology to help find a cure for progeria.
16. Anais and Megan met when they were 3 years old.
17. Megan is an author of children's books and has written a story about a bird who struggled to fly.
18. The Progeria Research Foundation, co-founded by Audrey Gordon, is working to develop drug treatments for progeria.
19. The foundation's ultimate goal is to cure progeria.