The text is a transcript of a video interview with Can, a 19-year-old boy who has a rare genetic skin disease called epidermolysis bullosa or butterfly disease. The interviewer, Leeroy, asks Can about his condition, his experiences, his challenges and his advice for others. Can explains that his skin is very sensitive and fragile, and that he has wounds, blisters and scars all over his body and internal organs. He also says that he has chronic kidney disease, a feeding tube, and a fused tongue. He shares some of the painful and scary situations he has been through, such as surgeries, infections, panic attacks and bullying. He also reveals that he has never had a girlfriend and that he wonders what it is like to live without pain. However, he also shows a positive and resilient attitude, saying that he never gives up, that he enjoys his life as much as possible, and that he hopes for a cure in the future. He encourages people to appreciate their lives and not to waste them. Leeroy expresses his admiration and gratitude for Can's courage and strength, and invites the viewers to comment and follow Can on social media.
A possible concise summary is:
This is a video interview with Can, a 19-year-old boy who suffers from butterfly disease, a rare genetic skin disorder that makes his skin very vulnerable and causes him many health problems. He talks about his struggles, his hopes and his advice for living a meaningful life.
Here are the key facts extracted from the text:
1. The text is a transcript of a video interview with Can, a 19-year-old boy who has butterfly disease or epidermolysis bullosa.
2. Butterfly disease is a genetic skin disease that makes the skin as vulnerable as the wings of a butterfly. It causes blisters, peeling skin, skin infections and internal organ damage.
3. Can was born with the disease and inherited it from an unknown ancestor. He was told he might not live long, be deaf, or be able to walk, but he proved them wrong.
4. Can suffers from chronic pain, kidney problems, esophageal narrowing, and malnutrition. He has to change bandages every day, apply different ointments, and use a feeding tube when he can't eat.
5. Can was bullied in school for being different, but he never gave up on himself. He also had panic attacks and feared dying in his sleep.
6. Can advises people to enjoy their life and make the most of it before it's too late. He says he lives his day as if it were the last and doesn't think about when or how it will end.