The article features 10 children living with the rarest medical conditions. These children include:
1. Savia Goncharova, a Russian girl born with her heart outside her chest, who has defied the odds by surviving and thriving despite her condition.
2. Ashlyn Blocker, an American girl who feels no pain due to a rare condition called Congenital Insensitivity to Pain with Anhidrosis (CIPA).
3. Anna, a girl with Harlequin Ichthyosis, a condition that causes her skin to crack and peel, earning her the nickname "butterfly child."
4. Katie Renfro, an American girl born with an oversized brain, who has undergone multiple surgeries and still faces significant health challenges.
5. Megan Hope Byrne, an Irish girl born with Holoprosencephaly (HPE), a rare condition that affects brain development, who has defied expectations and is living a relatively normal life.
6. Adelia Rose, an American girl with Progeria, a condition that causes accelerated aging, who has become an Instagram star and is inspiring others with her positivity and resilience.
7. Conjoined twins Tatiana and Krista, who share a neural bridge that connects their brains, allowing them to sense each other's thoughts and feelings.
8. Tom Tennant, an Australian boy with a rare skin condition that causes excessive skin folds, who has become the subject of intense medical research.
9. Lu Hall, a Chinese boy who weighed 132 pounds at birth and has a hormonal disorder that causes excessive hunger and weight gain.
10. Jaxon Buell, an American boy born with Microhydranencephaly, a condition that causes a lack of brain development, who has defied expectations and is living a life filled with love and joy.
These children are an inspiration to others, showing that even in the face of adversity, there is hope and resilience.
Here are the key facts extracted from the text:
1. Savia Goncharova, also known as Bathsheba, was born in Russia with a rare condition called thoracoabdominal syndrome or pentalogy of Cantrell, where her heart is exposed outside her chest.
2. She was not expected to survive the first week of being born but is now in her ninth year.
3. Ashlyn Blocker feels no pain due to a condition called CIPA or congenital insensitivity to pain with anhidrosis, which affects only 100 people worldwide.
4. Anna suffers from Harlequin ichthyosis, a rare and painful condition that causes severely cracked skin.
5. Katie Renfro was born with an oversized brain due to a one-in-a-million condition called megalencephaly.
6. Megan Hope Byrne was diagnosed with holoprosencephaly (HPE) while still in the womb, a condition that affects only 17 children.
7. Adelia Rose suffers from Gilford progeria syndrome, a rare condition that affects less than 500 people worldwide, causing premature aging.
8. Conjoined twins Tatiana and Krista Hogan share a thalamic bridge that connects both their brains, allowing them to sense each other's thoughts and feelings.
9. Tom Tennant has a rare skin condition that covers his body with excess folds of skin, similar to the Chinese shar-pei dog.
10. Lu Hall from China was the world's heaviest toddler, weighing 132 pounds in his first year.
11. Jaxon Buell was born without a huge part of his skull and brain and was not expected to survive, but he proved doctors wrong and is still alive.
Note: These facts are based on the provided text and may not be comprehensive or up-to-date.